This little girl has been on my mind all morning. I found these pictures on one of the therapists blogs and stole them! She is in an orphanage in the Ukraine. She also has the same diagnosis as E. In six years she is the only other case that I have heard of.
She has been swaddled in a bed, laying by herself because the workers were scared of what she had. They thought that it might be contagious. As you can see from the pictures she cannot even hold up her own head because she has never been on her tummy and had the chance to build up the muscles in her neck.
As I said, she has been on my mind all morning. I know that I will be lifting her up in prayer all day long.
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